Showing posts with label sick and tired. Show all posts
Showing posts with label sick and tired. Show all posts

Sunday

Sick Day with Chronic Health Problems

I came across this post from a couple of years ago, and it rang really true for me this week, so here it is again for anyone who, like me, needed the reminder. God bless your week!
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Days like today shake up my rhythm.  I don't like that.  I like spontaneity when I'm the one choosing to be spontaneous.  But I don't like the routine being thrown off.

I caught a cold last week.  For me, catching a cold can be a normal cold, or it can turn into something dangerous.  Problem is, I don't know which is which.

The space between "something's wrong" and "here's what to do" is frightening to me.  It's always a gamble, and I'm no good at gambling.  Sometimes I react too soon, and take measures that were unnecessary.  Sometimes I wait too long, and have to pay the consequences.
Casino Dice Stock Photo

I don't like being responsible for choices that have so much at stake.  That's why I don't like the routine being thrown off.

For example, this cold.  If it's a normal cold, I'm not supposed to have to go up on my steroids.  Only if I have an infection or fever.  But then an unexpected symptom or two added to it.  Did that mean I had the flu?  Should I go up?

If I don't go up when my body needs to, I'm going to be in bad shape.  If I go up when I don't need to, I'm going through all the extra med issues and then the tapering for no reason.

So I went up a little, then a little more.  By Sunday we decided to do a stress dose.  That's a whopper dose--which we did in the hopes of wiping out the sickness so it wouldn't run on and compromise my immune system any more.

Now today, Monday, I have to decide what to do again.  Should I start going down, so the tapering wouldn't be so difficult?  Or will going down just flare up the sickness again and I'll be worse off than before?

No, I'm not a schizophrenic.  I'm a control freak.

Having a day-to-day disease is not easy for a control freak.  However, maybe the Lord knows it's just what I need, to learn to let go of my need to be in charge.  My body is not my kingdom.  It is God's; I'm just a steward of it for this lifetime.

Last night I was discouraged, feeling sick, and struggling with the fact of having this to deal with at all.  And I was thinking about brain surgery and the risks involved.

As I lay in bed, fearing the weight of so many choices with so many ramifications, God whispered to me that it wasn't my responsibility.  Yes, I'm responsible for the daily decisions, like whether to go up or down on meds.  Sometimes I choose rightly, sometimes not.  But my life and my body are God's.  God knows the number of my days.  He know which one will be my last.  And He's not going to let me mess up to the point of changing that.  I'm not that powerful.

What a relief.

Tomorrow, I'll wake up and have to go through all of this decision stuff again, and again the next day until I stabilize.  Then once I stabilize, I try to establish a nice routine that will be broken up next time I get sick or have a flare up.  And when that happens, I will struggle with my natural tendency to worry and fear . . . again.  

I'm not sure if I'll ever learn to let go of some of my control-freak fears for good.  But I'm letting go of them tonight.

That's a start.



What? know ye not that your body is 
the temple of the Holy Ghost which is in you, 
which ye have of God, 
and ye are not your own?
 For ye are bought with a price: 
therefore glorify God in your body, 
and in your spirit, which are God's.  
I Corinthians 6:19-20

Monday

How Different Personality Types respond to Stress



CHRONIC ILLNESS AND YOUR PERSONALITY TYPE

Health nuts are going to feel stupid someday,
lying in hospitals dying of nothing.
Redd Rox

                How did you react when you found out you were officially unhealthy? Not unhealthy as in temporarily sick, but as in chronically I’ll-never-be-the-same, what-happened-to-my-life kind of unhealthy?
                People react to crisis in different ways. If you’ve ever lived with anyone other than yourself, you already know that. Some jump into fix-it mode and immediately organize and start battling the problem. Others leave the scene and go do something random that has nothing to do with the crisis at hand. Some eat. Others cry. Some rage. Others shop. Some sit and stare at the TV. Others analyze.


                And of course, since no one is officially in charge during the majority of crisis events, most of us end up getting frustrated at the way others are acting, or even the way we ourselves are acting.
                Why do some of us start emotionally eating while our friends are attacking the problem? Why do some seem to ignore the problem altogether while their spouses are going on about the negative details so thoroughly it makes everyone else depressed?
                Are we all slightly insane? Obsessive compulsive? Trying to make everyone around us miserable?
                Well, I can’t speak for your particular family and friends on those questions, but in general, no, we aren’t acting the way we do because of some unnatural, subconsciously vindictive reason. On the contrary, most of us are just acting naturally according to the personalities God gave us.
                Wow, you just went from being slightly insane to normal in three sentences. That’s got to make you feel good.
                Each person is unique, as individual as a snowflake, only much more complex (and we don’t melt—way superior). Nevertheless, all our amazing complexities as humans have been narrowed down to four main personality types by someone much smarter than myself. Those types are titled Sanguine, Choleric, Melancholy, and Phlegmatic. People have different mixtures of these four types, but any given person usually has one or two that are dominate, and tends to follow a certain pattern of thought and behavior based on those dominant types.
                See if you can find yourself: And by the way, every type has its strengths and weaknesses, so no deciding your type is great and everybody else’s is bad!

Sanguines—like to have fun. Sanguines are bubbly and fun-loving. They like to be the center of attention and tell stories, but tend to exaggerate and be disorganized.

Cholerics—like to have control. Cholerics are the ones who take charge, make quick decisions and like for things to be done the way they think is best. They make good leaders, but tend to be bossy and put tasks over people.

Melancholies—like to have things done right. Melancholies are smart, serious and sensitive. Most creative geniuses are melancholies with their attention to detail and deep creativity, but they lean toward perfectionism and depression.

Phlegmatics—like the easy way. Phlegmatics are easy-going, dry-humor, calm types. They love objectively solving problems and keeping peace, but have a hard time making decisions and have trouble being motivated.

                Did you find yourself in one or two of those types? (If you want to study the personality types more in depth, the information in this chapter came from Florence Littauer’s book, Personalities in Power, used with permission.) I can’t tell you how much it helped me and my marriage to realize that my husband and I didn’t have to figure out whose reactions were right and whose were wrong. We were both acting according to the personalities we were given by God.
                That’s not to say we’re excused to just act in whatever way comes naturally to us. Like I said, each type has its strengths and weaknesses, and each needs the tempering of the Holy Spirit to be balanced.
                That being said, though, it was such a relief to find out that these strong emotional feelings I have in response to my health condition are totally normal for my personality type. I wasn’t falling off the deep end or losing my mind, and you aren’t either!
                Let’s go more in depth on each of those four types, including how they tend to react to stress.

A Sanguine’s emotional needs are people related: attention, affection, approval and acceptance. They like to be optimistic and bubbly, and get depressed when life is not fun and no one seems to love them.
Sanguine’s reaction to stress: leave the scene, go shopping, find a fun group, create excuses, blame others.


A Choleric’s emotional needs are appreciation for accomplishments, credit for ability, and a sense of obedience. They like to achieve much, and get depressed when life is out of control and people won’t do things their way.
Choleric’s reaction to stress: tighten control, work harder, exercise more, get rid of offender.



A Melancholy’s emotional needs are space, silence, sensitivity, support and a sense of stability. They like to analyze, organize, and set long-range goals, and get depressed when life is out of order or standards aren’t met and no one seems to care.
Melancholy’s reaction to stress: withdraws, gets lost in a book, becomes depressed, gives up, recounts the problems.



A Phlegmatic’s emotional needs are a sense of respect, feeling of worth, understanding, emotional support and harmony. They are loyal, and get depressed when there is conflict, no one wants to help, or the buck stops with them.
Phlegmatic’s reaction to stress: hide from it, watch TV, eat.



                I am a choleric with a little bit of sanguine and melancholy thrown into the mix, and zilcho in the phlegmatic department. I have lists and charts and whenever I digress health-wise I research more and fight harder and sometimes make myself worse, but I don’t care because I have to be doing something even if it’s the wrong thing! Being a choleric explains why I would rather have faced the risks of brain surgery than just live with my condition for life (which is probably one of the reasons God is not allowing me to have brain surgery, because it’s supposed to be about Him and His strength not about me and mine).
                My husband is a phlegmatic with some melancholy, and I’m pretty sure nothing in the sanguine and choleric categories. He’s a wonderful listener, a fantastic helper, and great problem-solver, but when it comes to crisis, he just doesn’t react in any way that makes sense to me. His emotions don’t rise to the surface, he doesn’t attack the problem. Oh, he’ll analyze it with me for hours, but the information doesn’t motivate him to do anything.
                This is incomprehensible to me, and I used to translate it to mean he didn’t really care, because if he cared, he would respond the way I do (of course, right?).  Now, having learned the above, I know it is just his personality and has nothing to do with how much or how little he cares about me.
                That’s why this chapter is in this book, because all of us assume people act and react for the same reasons we do, and we translate their actions to mean what they would mean if coming from us. This is a bad idea. It leads to misunderstandings, hurt feelings and conflict.
                One of the last things you want is to be on your way to the hospital, annoyed with everyone you love because of the weird ways they’re reacting to this crisis!
                Now that I know people react to stress differently, I can give grace to those who act in a way that feels unloving or uncaring to me. Sometimes it is because they care very much that they are acting as they do; it’s their way of coping and I should not expect them to jump over to my personality type just because that’s what makes sense to me.
                It also shows me that I need God’s help to not just give my personality free reign, thinking my way is the best way. I need the Holy Spirit to temper my actions and reactions so I might please God in all I do, and so I can live well with others.

                All of us need to give grace, to others and ourselves. We need to know the truth about ourselves, because the truth will set us free. And we need to pray for help from God, who is above our personalities and can help us rise above as well.
                Maybe then we can get a little less frustrated with others (and ourselves) and not take personally what is really just personality.


This chapter is taken from the new release, You're Sick, They're Not: Relationship Help for Chronic Sufferers and Those Who Love Them. Click the title to order yours!

Unfullfilled Longings...and Flowers (Excerpt from You're Sick, They're Not)


Sick & Tired Book 2
YOU'RE SICK, THEY'RE NOT: Relationship Help for Chronic Sufferers and Those Who Love Them 
has been released!
The book covers important topics such as:
*How different personality types respond to a medical crisis
*The 5 love languages in regard to illness
*How to avoid friction during holidays and other family events
*What to do about the people who just don't get it

For today, I'm sharing a funny story from the book, a time when I got what I wanted, but through a very unusual route...

Excerpt from YOU'RE SICK, THEY'RE NOT  

           So how do we adapt if we really want something and nobody is getting the idea? I don’t know how you personally should deal with that problem, but I dealt with it once by buying myself flowers. You can think that’s weird if you want to.
            Here’s what happened. My husband was leaving the country for several weeks and I was going to be home with a new baby and a chronic condition. As the day to leave came closer, I wondered if Brian would think of something special for us to do, or maybe he would give me a card, or flowers…yes, flowers would be great. Then I could enjoy them while he was gone, and every time I saw them I could think of how he loved me. I built up my little bubble of hope, waiting for him to surprise me with flowers before he left.
            My poor husband, however, was busy trying to translate curriculum into another language, pack, and plan a huge trip. He forgot to think about doing something special for the wife he would be leaving behind. (Being a man, he tends to be rather single-focused—God made him that way so I really shouldn’t get all that mad at him about it.)
Translating...being a dad...not sure why I assumed he'd be thinking about flowers. =)
            I started worrying about this whole flower thing, remembering how I’d done this get-my-hopes-up-for-a-surprise thing, only to be surprised that he hadn’t been secretly planning some great thing after all. I debated within myself. I could subtly mention flowers and hope he got the hint. That usually didn’t work well. I could ask him if he was going to get me flowers and then hope he would. Or I could say nothing, be disappointed, and then for weeks feel down when I saw the table where my flowers were supposed to go.
            Funny how borderline insane the scene looks in writing. It all made perfect sense in my head at the time!
            So…I decided to not wait to be disappointed. I decided to help myself. I went to the store and bought some flowers. Then I brought them home, handed them to my husband and said, “Would you please give me these flowers and say, ‘When you look at these flowers, I want you to remember that I love you’?”
            You should have seen the look on his face. Priceless. It was that grand mixture of uh-oh, am I in trouble, along with, are you slightly crazy? I repeated my statement, holding the flowers out. He said he wasn’t sure if that was a good idea. I think he was expecting me to feel slightly bitter than I had had to do this myself. Funny thing was, I wasn’t. Deciding to go get what I wanted actually was quite liberating, much more fun than sitting around waiting to be forgotten.
            Finally, he took the flowers and said the little phrase, with much chagrin. I had to laugh.  
            Those weeks when he was gone, instead of sitting around upset that he hadn’t thought to get me flowers before he left (and how was he to know that’s what I wanted most anyway?), I had beautiful flowers to look at. And when I looked at them, I actually did think of how he loved me, and I smiled remembering the sheepish grin on his face as he said the little phrase I’d given him.
            I myself had turned the whole situation around by deciding to stop waiting for someone else to be responsible for making me happy. Maybe you can find a way to do that today, too.

Find You're Sick, They're Not at Amazon.com!

Friday

Yesterday's Trip to the ER, and the No Good Thing

Doctors fix problems.
Medicine fixes problems.
Tests show which doctor or which medicine will fix the problem.
Right?
Yes.
Sometimes.
Maybe.
Sort of.
Not exactly.

Help Button Stock Photo
The button doesn't work sometimes.

If you live with multiple chronic health problems like me (Addison's disease, asthma, hypoglycemia, scoliosis, and a cyst on the brain in case you wanted the list), you know that sometimes doctors shrug their shoulders at you, and medicine causes potentially fatal side effects, and tests send the diagnosis in the wrong direction.

For example: I've been having numbness and tingling in my feet, then hands, then lips, for a couple of weeks now. You'd think that I should go to the doctor and find out what is wrong and fix it. However...

1. I have multiple conditions and take multiple prescription meds. The above symptoms could be due to a possible 10 different things, or maybe something totally unconnected to the10 possibilities I thought of.

2. Depending on which doctor I visit, they have a different line of expertise or interest, so whichever is theirs is likely the direction they will test and treat. If I get the wrong one, I'm off in the wrong direction, possibly causing more harm than good.

3. If I decide it's a medication side effect, and start adjusting meds, again, I could cause more harm than good.

What to do? So many decisions. Finally, today, enough other symptoms were added to them that I went to Urgent Care, and then the ER. I just wanted somebody else to make the decisions for awhile. It didn't exactly work. Here's what happened...

It's been three years since I've had an asthma attack bad enough to go to a doctor for it. One of my asthma triggers is mold and this high humidity summer has been rough (literally) on my lungs. I went to Urgent Care and they gave me a nebulizer treatment (where you breathe in the medicine), and prescribed me a packet of prednisone (which if you've ever taken those, you know how fun they can be). Later I went to the ER because I wasn't any better. It takes a lot to get me to the ER, but not being able to breathe well will do it. They gave me 2 more nebulizer treatments (which made me shake so bad my teeth chattered), took blood (my veins don't like to give blood so it took some digging), did a chest x-ray because I mentioned having pneumonia once that led to surgery, and when all that didn't fix it, did an EKG just in case.

Baby With Nebulizer Stock Photo
I got to use one of these, but it didn't have cute stickers on it. And no, that's not me. =)


I sat and waited and prayed, and then, as has happened so many, many times before, the doctor came in and told me the tests came back great, the bloodwork was fine.

What now? I asked questions, the doctor answered. I asked more questions, the doctor gave options for me to choose, basically something to try that might help, or might make things worse. I asked more questions, the doctor had to shrug.

Back to me making more choices because the doctor can't find what's wrong. This gets very old, needing to be in charge of my own mutinous body, needing to be the to one to decide if I should risk taking this mega antibiotic that could help me, or could put me back in the hospital with a dangerous reaction. Needing to decide if I should go to a specialist and which kind and where will the money come from and how guilty I'm going to feel if it doesn't fix anything.

Can you hear my mind moaning and my heart crying?

I did actually cry at the ER. Nebulizer treatments do that to me. As I sat there, shaking like a leaf in the wind, my head in my heads--I guess I was trying to hold my body together in case it shook itself loose--I asked my husband to read me Psalm 84. He read verses that comforted and helped, and then he got to one verse that I knew by heart, but today it whispered something special to me.

"No good thing will He withhold from them that walk uprightly."

The ultimate responsibility does not fall on me. If I am walking with Jesus and living His way, I can leave the final result with Him. If the good thing is a clear test result, He will provide it. If He has reasons why the good thing is a vague result and no answers, then that is what will be provided. Even for those who walk with the Lord, but die, that was not judgement or failure on the part of some doctor, or on the part of the person. It was their good thing.

I fear making the wrong choice, following the wrong lead, taking the wrong medicine. God tells me not to fear. If I keep this verse in my heart, I will remember why. Seek His kingdom first, and let Him add what is needed. Walk with Him, cling to Him, and He will provide whatever is best. He already knows the number of my days. If I'm walking with Him, I'm not going to mess that up.

That is much peace to me tonight--I'm writing this at 11:45pm, after trying to sleep, trying to stop thinking about what I should do, trying to stop feeling badly. I will seek His direction. I might miss it and make the wrong choice. He can take care of that. If I delight in Him, all will be well, even when it's not. That sounds like a contradiction, but as God once said, "All things are possible to them that believe."

So I shall give my worries and fears and symptoms and pills and decisions to Him. And I myself shall snuggle into a ball in His large, comforting arms, and choose peace.

I hope you choose it today, too.

Related Posts: When It's Just Too Much

Urgent Care, Steroids, and Antibiotics-Here I Go Again

My New Year's Even Party, Another Exciting Trip to Urgent Care

Sunday

A Letter to Those who think Chronic Illness means Taking It Easy

Lots of people look at the newly retired with envy. "You are so lucky to be retired," they say. "You get to stop working, travel, do the things you never had time to before. Wow. I wish I was in your place."

Sunset And Seascape Stock Photo

However, I've never heard anyone stand in the door of a nursing home and tell an elderly person, "You're so lucky to be old. You don't have to cook anymore, or clean, or even bathe yourself. You get to lie around all day and don't have to go to work. I wish I was in your place."

Wheel Chair In Hospital Stock Photo

If hearing about it, the two situations might sound similar. However, those of us who have been close to people who are elderly know they hate being dependent on others for everything--especially when those others might forget or complain--they miss work and the interaction with people, and they're sick of lying around all day feeling useless.

If the above is understandable, I would like to respectfully request you stop assuming people who live with chronic illness are lucky. Those benefits you see come with costs, such as:

"You don't have to get up and go to work."
Some days we long to be working again, to be around people, to do something that is filled with purpose. Our job has become living with illness and all that takes.

"You get to lay around all day."
Some days pain keeps us in bed. Some days symptoms are so bad we cannot connect with the rest of the world. It's not a vacation. It can be a very lonely place.

"You get to say no to whatever activities you don't feel like doing."
There are so many activities we miss. Like hiking. Or going to an amusement park with our kids. Or even the park down the road.

"You get to avoid all the hard work at family gatherings or big events."
Vacations and family gatherings are a huge struggle. Just showing up sometimes takes days of preparation, extra medication, and enduring painful consequences later. We sit down while you stand, but feel embarrassed about it. We watch others serve, and feel guilty. We want to be involved, and hate being stuck on the sidelines.

"Your life is so easy."
Medication on an exact schedule. Food we can't eat; food we must eat, again, on a schedule. Medicines we can't take because they interfere with certain conditions or other meds. Doctor's appointments, people thinking we're faking it, having to explain our limitations over and again when we hate admitting them at all. Scary test results, hospitals, lots of needles, and hearing, "We don't know what's wrong."


After one hospital stay.

It would help so very much if you would understand. We're not asking to be babied. (It is true that some people milk illness for all it's worth, but please don't think we're all that way. Most of the people I know with chronic illness would give just about anything to be better, and they often downplay symptoms or pretend not to be in pain because they don't want to draw attention.)

Remember that retired person and the nursing home person? Can you imagine how it would feel if a person in a nursing home was told, "You're so lucky. You have it so easy." when they feel their lives have been taken away? When you look at us like we're the ones getting to do all the things you wish you could do, it hurts. Our lives aren't one big vacation. In fact, we don't ever get a vacation from illness. It is there every day, every hour. We don't get weekends or days off or, ironically, sick days.

Vaccine / Hypodermic Syringe / Needle / Pills Stock Photo

I'm not griping or saying everybody thinks we're a bunch of lazy bums. Most people are understanding and kind, and to you, I say thanks. For the others, even if you are pretending to joke about it, we feel the pricks. Please get close enough to us, ask about what a normal day for us is really like, and seek to know the truth. We would love to have you stop envying us and pray for us instead.

With appreciation that you took the time to read this,
One of the over 133 million Americans who are Chronically Ill


Related Posts: Are You Sick & Tired of Feeling Sick & Tired?

What Sick People Wish Healthy People Knew

My Name is Kimberly, and I Have Addison's Disease

Monday

Chronic Illness-My Part-Time Job

I'd planned to write a post on how having a chronic illness is my part-time job. Like a typical part-time job, I spend a few hours to sometimes over twenty hours a week on my illness--the schedule of pills and food, the limitations I have to plan ahead for, the old conditions and new symptoms, doctor's visits and a notebook of my multiple conditions and things that happen and what they mean, and side effects and changes and questions to figure out, and when I have a flare up or just catch a cold and the domino effect it has other everything else, and...and...and...

But I was feeling lousy and just wasn't up to it.

I guess I just made my point.

Sunday

Grieving the Loss of Ourselves

If you've been living with chronic illness for awhile, there has likely been a time when you realized this was your new life whether you wanted it or not. Your former life, and even your former self, were gone. Forever. Things you used to love to do. Places you used to love to go. Even parts of your personality have likely changed due to your body's brokenness.

Sounds like a major loss, doesn't it. Well, it is. And it deserve to be grieved.

I used to live overseas. I've rafted the Nile River. Hiked the hills at the base of Mount Everest. I used to love roller coasters and trying new adventures.

Now I seem to live somewhere between a hermit and a hibernating bear. Just the thought of a roller coaster makes me nauseated, and the idea of just the plane flight to get near Mount Everest is enough to make me break out in a cold sweat.

I miss myself. Some days I don't think of it anymore, but other days I get reminded of who I used to be and what I used to be able to do. It's been on my mind lately since I'm going to be missing a big event next month because my body isn't adapting to my tapered medication as quickly as I'd hoped (12 weeks total, which doesn't seem all that quick if you ask me), and I'll still be tapering instead of getting to go. No sense whining about it, but things that remind me that it's okay to feel a little grief over what has been lost.

Just like grieving other losses, we have that first initial time of grief, but then after that, even as we move on with our lives, certain things or events or days remind us, and we feel that loss again. That's not wrong, not unless we choose to live there and allow it to make us bitter or depressed.

So today, I'm borrowing a few questions from one of the chapters in my new Sick & Tired book--the chapter on grieving. Feel free to add your answers and comment on other people's answers. Sometimes we feel we are the only ones with this kind of loss to grieve, but we aren't, and I hope reading other people's thoughts and experiences will remind us all that:
1. Yes, your loss is legitimate.
2. Yes, it is good to grieve it.
3. Don't choose to live there.

I've talked enough for today. Now it's your turn.

Individual Or Group Study Questions from Sick & Tired:
1. Have you ever thought about the fact that having a
chronic illness involves genuine loss and deserves to be
grieved?

2. How did you feel immediately after hearing you had a
condition, or when you realized your symptoms were
not going to go away?


5. What do you think a reasonable time for grieving
should be for you personally?

6. Do you think brokenness is necessary before acceptance,
or can that part be skipped? Why or why not?







Monday

So Are You Better Yet? and Other Questions We Don't Want to Hear



 "So are you feeling better?"
"Have you been able to get off your meds yet?"
"Get well soon!"

Sometimes it feels like everyone is asking the same thing: "Why aren't you better yet?"


I used to look around me in amazement, and a little envy, at all the healthy people who continued to live their lives they way they wanted while I had this whole new reality of life with a chronic illness shutting me down.

Over these past few months, especially since I started doing research for Sick & Tired, I've been surprised to know that a lot of those people were just like me--people who didn't look sick, but inside struggled with a barrage of symptoms that were difficult, discouraging, and sometimes debilitating. 

If the statistics are true, about half the people you look at within any given moment are sick just like you. Most of them don't look it. Some of them rested the entire morning just to be present wherever you are, even if it's the grocery store. Some need to get home soon so they can eat or take pills or get a shot before they crash. Some are functioning under a discouragement more painful than their worst physical symptoms.

So, in recognition that there are a lot more of us out there than most would think (even us!), instead of asking the kinds of questions that make us want to scream, eat a carton of ice cream, or hide from the world, I'd like to ask a few questions you can actually answer. The following come from the discussion questions in Sick & Tired, due for release June 26th. I'd love to hear your answers below, and you might enjoy actually getting to share them without someone saying, "Have you tried __________?" or, "If you'd just exercise more..." or "Can't the doctor do something?"


So here you go. Take your pick of one or two and answer in the comments!
From Chapter 1 Joining the Club Involuntarily

When did you first approach a doctor with your symptoms? Did he take them seriously?



Chapter 2  So What’s Your Problem? – How to explain your condition with confidence
Do you feel like people don’t take your condition seriously because it isn’t diagnosed yet, or is an “invisible” illness like fibromyalgia or chronic fatigue?


Chapter 3  Sit Down and Cry About It – The real and important process of grieving your loss
How did you feel immediately after hearing you had a condition, or when you realized your symptoms were not going to go away?


Chapter 6  When the Well-Meaning Annoy You – What to do when you’re ready to snap
What phrase do people say that gets to you the most?


Chapter 10 The Belief Test – Can chronic health problems be a gift in disguise?

Do you believe God could take away your condition if He wanted to, so since He hasn’t there must be a reason?

I hope it feels good getting to share in a place where you are believed and taken seriously. One thing I love about the internet is how it gives those of us with chronic illness a place to develop and maintain friendships without having to go out and get exhausted. We can chat with friends from home, while still in our pjs if we want. =) 
Um, if your pjs look like these, please don't tell me.

I'm looking forward to reading your answers, and feel free to respond to one another! 
And if that doesn't encourage you enough, I'm adding below a sneak peek at Sick & Tired. Enjoy!


Introduction

Be careful about reading health books. You may die of a misprint.

Mark Twain




            Sometimes I want to slap a sticky note on my forehead that says, “I am sick. No, I don’t look sick at this moment. But I am not faking having a disease just because I’m not in a wheelchair, and I am not a freak.”

            Now, I am aware walking around with a note like that on my head would actually put me in the freak category. Not to mention all those words would only fit on a Post-It note if I wrote it very, very small, and then people would have to get really close to me to read it, and that might just put me over the edge. I’m really into my personal space.
            The thing is, I don’t like talking about having chronic health problems that interfere with my life. I don’t like the way people look down, over, and around me when they realize I have a chronic illness. Or worse yet, the suspicious way their eyes narrow when they decide it’s all in my head, or I’m a hypochondriac.
            Why does it bother me to tell people I have health problems? Doesn’t everybody at some point? I suppose that’s the crux right there. For most people, the difference is in the “some point” part. They have a problem. They go to the doctor. Doctor fixes it. Life moves on. It was a small, annoying inconvenience.
            For me, and likely for you since you’re reading this, your problem is not so temporary. You’ve got it for life, or until science finds a cure, which for some diseases is as likely as winning the lottery when you haven’t even bought a ticket. So we make people nervous.
            Nobody wants to have a condition that affects their social outings, work choices, family life, and just general day-to-day stuff. Nobody picks that for what they want to be when they grow up. “Oh teacher!” The kindergartener excitedly raises his hand. “When I grow up, I want to have a chronic illness and have people say how strong and courageous I am for enduring it even though I don’t have any choice in the matter! Woo-hoo.”
            Instead, Americans spend billions trying to avoid anything that even smells like sickness. Our country has enough pills, vitamins, and herbal remedies to make you sick even if you started out healthy, or at least to make your urine turn neon yellow—which is an interesting phenomenon, though likely not worth all the money it took to make it happen.
            We all desperately want to be well. And why not? Being well means you get to be as active as you want to be and in charge of your own daily schedule: How much sleep to get. What to eat. What job to choose, or how many children to have.
            For those of us with chronic illness, we’ve had to give up some or all of those freedoms. And they probably didn’t seem like freedoms at the time. We likely took them for granted until our bodies took them from us. Now here we are, active brains inside limited, broken bodies. But as technology has yet to create a way to get an entire body transplant, we’re stuck with it.
            Unless, of course, you have a neurological problem, as I think I might, in which case I’m sorry about your brain. Getting a brain transplant is a seriously bad idea. You would not even know who you were, and would not appreciate how much better you were feeling.
            I would like to trade in my health problems and be well again. I sometimes think that would be getting my life back. But the truth is, this is my life, and as I have come to (almost) accept that fact and make the best of it, I think there’s hope for me.
            Maybe not to cease being a freak to some, but to cease seeing myself as a victim, as a traumatic case, or even as a lesser being because of my illness.          
            That being the goal, maybe I’ll remove the hypothetical Post-It note from my forehead and put it in my back pocket, to be removed periodically and waved in people’s faces only when I’m having a tough day.
            It’s a start anyway.


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